Tag: cystic fibrosis

My Trikafta story

My Trikafta story

My Trikafta story began 4 days ago. I was excited but didn’t want to get too ahead of myself. I had heard reports of Trikafta (called Kaftrio in the UK) making huge positive (mostly) changes and hoped this would be the same for me. For 

Week three corona virus pandemic

Week three corona virus pandemic

Bored bored bored…. I have been going on walks in the countryside and getting to know all the local wildlife on a first name basis…I love my sleep so I only get up late. I tend to work fast though so mostly catch up on 

Self isolation – week two corona virus

Self isolation – week two corona virus

Well the boredom continues. I often advise clients to take care of themselves as this can provide a psychological boost and improve your mood. With all this time on my hands, due to the coronia virus pandemic, I decided to take my own advice. I 

Self isolation – week one corona virus

Self isolation – week one corona virus

I’ve been in self isolation with my boyfriend, Nick, for nearly two weeks now. It’s been pretty boring and I thought it might be useful to write about my experience as I know many others are going through the same thing. Boredom I am pretty 

7 Ways To Manage Pain If You’re Chronically Ill

7 Ways To Manage Pain If You’re Chronically Ill

If you struggle with pain management and you’re unsure how to improve things then don’t worry, you have definitely come to the right place. Whether you’re struggling with chronic pain or you have sustained an injury, you need to ensure you’re doing all that you 

Day 16 Cystic Fibrosis and M.Abscessus

Day 16 Cystic Fibrosis and M.Abscessus

This is an update from my previous post. I’ve been in hospital two and a half weeks now and suffice to say I am going NUTS! Have had enough and feeling fed up. I feel so disconnected from the real world in here and I 

4 Strategies For Dealing With Chronic Illness

4 Strategies For Dealing With Chronic Illness

Taking Control Of Your Situation Having chronic illness doesn’t mean you must be controlled by your condition. There’s always a positive spin you can put on even the most difficult situation. You can also go the negative route. You could either say: “Wow, I have 

Day 1 Cystic Fibrosis and Mycobacterium Abscessus

Day 1 Cystic Fibrosis and Mycobacterium Abscessus

I’ve been in two minds regarding blogging about my latest health issues. I decided it might be useful to someone else and I know I struggled to find personal accounts when I first googled Cystic Fibrosis and Mycobacterium Abscessus. I flew to Phuket, in Thailand 

Inspirational talk by Klyn Elsbury

Inspirational talk by Klyn Elsbury

Klyn Elsbury is an inspirational woman living with Cystic Fibrosis (like me). I particularly enjoyed this talk she gave where she outlines the difficulties of living with an illness, dealing with adversity and rising above it… Mandy X