Mental health, emotional wellbeing & personal development

The truth about hospital stays

The truth about hospital stays

Living with Cystic Fibrosis (CF) means that every now and then my little lungs end up needing a good clear out with some strong drugs delivered intravenously. Currently, I need one of these ‘tune ups’ every 12-18 months or so. I tend to pick up bacteria and nasty airborne germs far more easily than the average healthy person.

This is because CF creates an evironment in the lungs that bacteria thrive in. Mucus isn’t readily cleared from the lungs and other organs in the body (like the pancreas) and this means uninvited bacteria can have a good old party down there and create some lung damage as they go.

So I am currently in hospital, on IV’s for a minimum of two weeks, although the IV’s can be finished off at home if progress is good. You would think that hospital would a bgreat place to rest but it isn’t. The truth about hospital stays is that you get very little rest!

I decided to write down my schedule today just to give you an idea. I think the care here is very good and I am not complaining but I would like to dispel the myth that hospital (at least for CF patients) is a good place to rest. NOT.

Yesterday, I wrote down a list of everything that happened – take a look for yourself:

6am First intravenous drip. 25 minutes long

7.50am Finger pricked and blood sugar readings taken

8am Breakfast. Yay!

8.30am Morning observations

Blood pressure, oxygen saturation and temperature taken

8.45am PICC line inserted. A long line to help administer intravenous

meds. Took 45 minutes. Ouch!

9.30am Exercise session arranged with physical trainer

9.40am Menus – choose meals for next day

9.45am Bloods taken for further testing.

9.50am Cleaning lady in room cleaning

10.05am Intravenous meds administered and old temporary IV line

removed.

10.10am DNAse nebuliser. Meds that I inhale through a nebuliser 3 times

most days

10.20am Dietitican

10.35am Physiotherapy session to help clear lungs

10.37am Physical trainer again to reschedule exercise

10.40am IV meds finished and flushed

10.45am Doctors visit to update me on tests etc. All quite gloomy today…

10.55am Menus collected

11.00am Spirometry. Lung function tests to determine current function of

lungs

11.30am More pills brought to me to take. Steroids.

11.55am Blood sugar levels taken again

12.00pm Lunch. Yum…

12.40pm Lunch finished and tray collected

13.10pm Another intravenous (IV) med started

13.45pm Physio checking on next physio session time

14.05pm IV meds finished and flushed

14.10pm DNAse nebuliser

14.15pm Physio session

14.50pm Exercise session – cycling bike

15.35pm Blood sugar levels tested

15.45pm Bed linen changed

16.20pm More tests

16.30pm Personal trainer – rescheduling exercise tomorrow

17.40pm Housecleaning, cleaned room

17.50pm Blood sugar levels

18.00pm Dinner

18.30pm New dressing put in PICC line

20.20pm Observations – blood pressure, temperature etc

22.00pm Last IV for the day

Not much resting going on but still I am happy to be receiving great care. In the old days, I remember being able to nap more in the day but modern day life in hospital seems to be matching the world outside of hospital. Incredibly busy and always something going on. No naps allowed!

Mandy X



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